Bethany got worse

 I noticed a few months later Bethany's skin was getting worse she was at her doctors up to three times a week for different creams and anti biotic 
and steroids, and she was also seeing the dermatologist frequently. She kept getting impetigo which made things a lot worse.we had tried over 100 creams and bath ointments on her but nothing seemed to be working. I had noticed that in the summer she got a lot worse through out her whole skin problem she was a very tearful child who was never happy i went back to the dermatologist and mentioned that the heat seems to make Bethany worse. when i took her out in the sun she would literately burn, have ashed and blisters on her body parts that was on show to the heat. The dermatologist decided it was time to refer her to a special heat dermatologist in st Thomas's hospital in London. i was hoping now i would get some answers and something to make Bethany life better for her as most of her time she was bandaged to prevent her making her condition worse, it brought me to tears. she was not living a normal life having to sleep in bandages, get up and be re bandaged etc. the only time she was not bandaged was eating time eventually she had to learn to eat and drink with them as even for a split second of them being off she would scratch herself to the point of pain and it would cause upset for all of us.