Finally answers about Bethany

Bethany finally went to see a specialist in st Thomas's hospital in London who diagnosed her with "photo aggravated eczema" before i was told my daughter had this very rare condition i never knew what it meant.The specialist told me my daughter was allergic to sun light and heat i was devastated. I thought to myself will my daughter ever live a normal life as she was allergic to something that could not really be avoided. He gave her a whole different type of creams including strong steroids
and special sun tan lotion. i knew from now on a drastic change was needed in her life to make her more comfortable. Bethany has been so good will all of her coniditions she has never lived a normal life so whats the difference to her.