skin is flaking and falling off

(10/6/2013) Beths skin is so dry its flaking and falling off she is covered in it  she has cuts still all down her arms and feet and her chin the weather is nice and windy today and that is good for us 

bethany is being re admitted

Had a phone call from great ormand street bethany is being admitted from the 24th till the 28th of this month if they have any cancellations bethany's addmition will be brought forward. Hope everyone is well xx lots of love me and bethany xxx

happy princess

(6/6/2013) Her skin is still looking very sore but I have a happy little princess for the moment.  i also Spoke to great ormand street again today after they recieved the pictures I emailed they agree its bad and have faxed my gp a prescription for me to pick up in the morning with some different creams and they are thinking of re admitting her I the next couple of weeks for wet wrap treatment again as she is just such a complex child they think due to her immunity problems shes getting immunity to the medication so quick not giving it a chance to work just a wait game now lets hope something gives her a little relief hope everyones well xxxx

waiting for advice from great ormond street

(5/6/2013) Bethany is so so sore and in such a bad way I have phoned great ormand street for advice just waiting on them to return my call

later that day..

Great ormand street want bethany put back on antibiotics by the gp who I have an appointment for at half 4 and when I have seen the gp I need to ring them back for them to make a decision with what to do. Nursery have said that she has been so itchy that she has had her body suit with the mittens on today

cut up all her hands and arms

(4/6/2013) Bethany has been so itchy the last couple of days due to the heat and the uv rays her body, feet, arms and hands are all cut up bad times

the weather is warming up

(31/5/2014) Has a poorly little princess this afternoon its warming up so she is burning and getting very itchy, dry and agitated but is still trying to have fun with her little friends. Xx

blood tests really upset my princess

(29/5/2013) Beth has had her bloods and screamed so loudly and was so upset that the staff felt so bad just got to wait for the results hope your all well xxx.