unfortunately off home today with no answers

(7/5/2013) Bethany wearing her new great ormand street hoodie  she loves it but on a different note We are off home today. Unfortunately didnt get any answers as I was hoping. Beth has been wet wrapped the whole time so her skin in great they have given me two weeks to decide weather or not I want to put bethany on the innune system drug as there are many pros and cons. Bethany has had this treatment before and in a week she is bad again. So unfortunately being in hospital has only sorted the problem short term as you can tell as she was burnt red rore in the car on the way home. lifes just not fair