(21/5/2013) Hey everyone sorry for not updating you in a while me and both the little ones health has been really bad. I have made a decision to accept the immune system drug they they have offered Bethany We are back off to great ormond street tomorrow for her to start on the drug. Luckily the weather has been very good to us and hasn't been hot enough for Bethany to burn but she is still very itchy and really doesn't like her new medications its just a daily struggle. Hope your all well and sorry again for not posting on here sooner. Will keep you all updated about how it goes tomorrow
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