Bethanys medication chart

Bethany is finally home and it feels so nice to be home. She has a very jam packed medication chart but I am glad she finally has some comfort and i so badly want to keep it that way 

princess waiting to come home

Bethany was in hospital from monday the 18th of febuary till the 22nd of febuary. They finally released her but have kept her on a lot of different medications and creams to try and avoid Bethany getting bad again. She was so excited to come home and see her brother and nephew and she looked absolutely amazing. I just really hope that she can stay this way as we have waited for so long.

Heat reactions while in hospital

While Bethany was in hospital she had three heat reactions, first one was when she got there on the 18th of febuary as the hospital had the heating on and all the windows closed so Bethany burned and they had to move beds. The next two where at night where the ward was really hot, Bethany had to have the windows all open and fans on her to try and cool her down as I can not be in charge on the heating in the hospital so it just cant be avoided.

skin drying out too quickly

on the 20th of febuary Bethanys specialist came too see her in the morning and said she will be in till tommorrow or friday as her skin was still drying out too quickly and they will upped some of her medication and want to keep an eye on her. At the moment she is being mouisturised nearly every hour and after 15 mins she has dried out already so they are changing that cream too. Other than that she is fine and happy and having fun with her little friends on the ward. 

allergic reaction

on the 19th of febuary Bethany had a really bad reaction to her new cream starting itching, screaming in pain and turning bright red was really scary. My mum and the nurses had to quickly bath her to get it off her. she was in agony :( poor princess. She looked very poorly after and all she wanted to do was sleep.

On the first day at hospital

When Bethany arrived in hospital on the 18th of febuary she had a heat reaction as all the heating was but since they closed the curtains,opened all the windows,moved beds and gave her a fan since then she has not been too bad.The doctors have changed Bethany creams, given her more oral anti biotics and have taken her off all her anti histamines for 24 hours to see if they are even working. They have also been trying to hurry up the referral to great ormand street hospital. Shes loved all the attention today from the doctors.and nurses today but misses her brother lots. 

admitted to hospital

on the 18th of febuary Bethany had her dermatology appointment. I really wanted them to help her as for the past week she had been suffering so bad. The dermatologist decided that she needed to be admitted to hospital for intensive skin treatment to help get it under control. I had been trying my hardest to keep her skin clear and get her through all the bad times. Unfortunately it just was not enough but we are in the right place now. Bethany can get some help and get some comfort and a life that she so desperately wants and deserves.