bad night caused problems

Bethany had such a bad night last night she was up scratching herself to shreds  it was just horrible having to keep pulling her arms away from her body to stop her scratching. about 2 am she managed to get to sleep but by then she was torn apart and covered in blood. this morning Bethany has woke up with infections again so we was back up the doctors for an emergency appointment. The doctors have advised me to put her back on antibiotics even though she has just come off some and change all her creams. Bethany is just sitting on the sofa looking sad and ill lots of cuddles for her today. if i could i would have this illness myself just to give my daughter her life back. its hard enough when i get an itch i have to scratch it, but bethany is itchy all day and all night i cant even imagine how hard that must be. i just want some comfort for my little princess

feeling sorry for herself

Today she is so sore and so itchy and she is feeling very sorry for herself nothing is making it better. i just wish i could take her pain away but unfortunately there is nothing i can do. every time i look at her shes scratching till her skin comes off or breaks open. its heartbreaking we just cant wait to go see the specialist at great ormond street hospital and hopefully they can help us 

itchy itchy itchy

on the 25th till the 28th of January  Bethany has been very itchy and sore and has now made a few open wounds on her arms and her chin that are getting infected. so she will be back on anti biotics soon enough. she is not sleeping properly due to being in so much pain. she strips of and just scratches and hurts herself more. its such a vicious circle i just wish some one could help my little princess

finally we can get some answers

on the 23th of January I saw a dermatology nurse yesterday and we discussed all of Bethany's problems in detail. i found it so helpful to have some one listen and understand what me, Bethany and my son go through on a day to day basis. She seemed to want to help me fight for answers and that's what i like. Bethany s dermatologist has decided to refer her to great ormond street children s hospital as its the leading London pediatric hospital with all different types of specialists to try get us the answers we so desperately need. couldn't be happier at the moment. very positive thinking

one minute she was fine then she had a reaction

on the 21st of January Bethany was fine all day then a reaction came out the blue. we was hoping it was gonna be a good day but unfortunately not :(

major skin reaction

last night Bethany had a major skin reaction which made her skin all red and sore. she was very itchy and had to have her tubi fast garments on her. Bethany reacts to so much her body takes on so much. She never has anything she is allergic too but it is hard too keep her away from heat and uv rays as they are out in most different weathers and seasons

bethany loving the snow

Bethany has really enjoyed herself playing with the snow. Bethany cant play out in the sun so snow is ideal for her