Tuesday, 2 July 2013
cuts are back from itching so much
(24/4/2013) Bethany has been so itchy that she has cuts all up the side of her face, legs, feet, arms and hands but still keeps smiling. Unfortunately bethany is so itchy we are having to peel her hands away from her. She has torn herself apart and is continuously telling me she is itchy and crying. At nursery she told her teacher that it was stinging her and she was very upset. My poor baby going to be another long night like last nite and one full of cream, bodysuits, bandages and wet wraps
finally heard from great ormond street yay
(23/4/2013) hello everyone. finally have heard from great ormand street and a date has been set she will be going in hospital from the 3rd of may till the 7th of may. bethany has scars and scabs on her face where she has been scratching so much. now its really hot aswell it doesnt help. not long now xx
the pain was so bad bethany
(15/4/2013) Bethany had a very bad night last night she was so so itchy she was fully wet wrapped i was having to tear her hands away from the blood on her body she was in that much pain she had asked me to cream her and wet wrap her and beth never asks x hope everyones well
tearing herself apart
(19/4/2013) unfortunately beths skin yesterday was very bad and very blotchy, red and raised for the whole day yesterday and she was tearing herself apart. sooo itchy bless her. wish i could take away her pain
picture for all Bethany's supporters
(17/4/2013) Pretty princess wanted me to take a picture for you all to say hello to all her supporters
burnt but gorgeous as ever
(16/4/2013) here is a picture of my beautiful princess unfortunately she is very burnt but still as gorgeous as ever
the pain was so bad Bethany asked to be medicated
(15/4/2013) Bethany had a very bad night last night she was so so itchy she was fully wet wrapped i was having to tear her hands away from the blood on her body she was in that much pain she had asked me to cream her and wet wrap her and beth never asks x hope everyones well
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