Bethany asked me to take a picture for all her "friends" meaning all of you in her own words she said " take a picture like this for all my friends as im beautiful" love her so much. please continue to support and understand bethanys condition and if you are on facebook join in with our facebook group
https://www.facebook.com/pages/Support-Understanding-for-Bethany/273750466014879
Have been to the dietitian they have said to keep her off egg,milk,cod,wheat,soya and peanuts for up to a year and see if any of that helps. Now i need to work out what food she can have as most food that does not have one of the foods in has one or more of the others in it. They want Bethany to go on vitamin tablets and to try her on oatly milk. Poor princess has so many allergies
yesterday on the 11th of march when i picked Bethany up from nursery she was very upset and tired i let her go to sleep for a bit she woke up and was screaming in pain her face was burnt it was horrible she said she felt really ill. me and Bethany had loads of cuddles in bed
on the 10th of march Bethanys skin is still clear apart from her head which is extremely itchy and shes been tearing it to shreds. shes had a great couple of days. Its been so lovely beth is off to see the dietitian on Tuesday too see what she can advice. I had a lovely mothers day meal but unfortunately it got a bit warm and beths face started turning red and getting really hot. Happy mothers day to all the mummies on here :).
on the 6th of march i am pleased to say due to the weather being very cold and horrible Bethany is having a good day today unlike yesterday when she burnt within two minutes of being exposed to the uv rays from the sun. its such a horrible thing watching your child burn in front of your face. so glad we have bad weather again :D. Bethany's new itchy spot is her scalp she has blood and scabs on her head but at least the rest of her is clear :D. We have heard from great ormand street and have her appointment on the 20th of march :D
on the 5th of febuary i picked Bethany up from nursery and we got into nannys car to drive to pick her brother up from school. unfortunately the weather was really hot and sunny so within less than two minutes of being in the sun she started to burn. its not a nice thing having to watch your child burn in front of your face. we picked my son up and got her straight home and closed the curtains slightly so that the uv rays didn't hit her.
on the 4th of febuary Bethany burnt again in her sleep. was so lucky that she slept through it though but she has been tearing her head apart and has blood and scabs on her head now.
