Tonight's heat reaction

Tonight Bethany has had another reaction to heat on her face. It doesn't seem to be bothering her too much which is great and is not making her itchy. Tonight her skin has not reacted like it has for the last two nights which is a relief. Hopefully we can all get a good night sleep and that we are on the up wards spiral again. The thing is Bethany's condition changes so quickly and from one or two up to a ridiculous amount of times a day. When will things get easier for my little girl.