things just change so quickly

 on the 16th of december Bethany had really been enjoying the day and last couple of days with me having family and fun times. It was so nice too see her so happy it made me so happy. I thought maybe this is it that we have cracked it before Christmas but thats where i was proved wrong. later than night Bethany started itching and was covered in a rash from head too toe. my poor baby girl was in pain once again. Her condition is just so unreliable and changes in like the click of a button. maybe Christmas wont be a pain free one this year