Thursday 14 February 2013

4 days of continuous pain

My poor princess has really been suffering the last 4 days near enough all night and bad all day. She is continuously itchy and has more scars. Shes been continuously bandaged and wet wrapped. Poor girl has not had a break from it its been hell. shes been screaming all day and all night none of us are sleeping because she just cant get any comfort what so ever. the dust from the builders of course has not helped and the uv rays through the windows and on the school run for her brother is not making life any easier for her. i just wish there was an answer out there to make my princess better and give her a life of happiness not a life of pain and suffering like she is going through. what life is it for a 3 year old to have her hands in bandage all day and night and to be continuously bandaged to stop herself causing herself more pain and discomfort than she is already in. i am really hoping that great ormond street hospital will get back to us as soon as possible as we really need help right now. nothing and i mean nothing is working :(

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