The Infection

Bethany has been scratching so much that she is so sore and has so many open wounds. Some of the open wounds are now infected and some are nearly there. Even when she is playing with her toys her skin is tearing and bleeding and making her so upset. emergency doctors appointment needed tomorrow not had so many smiles today.

blood and wounds

today Bethany is not in a great way. she was up all last night tearing herself to shreds. i went in there about 2 and there was blood everywhere she was just so itchy. Bethany now has so many open wounds and sores and she has made her fingers worse. my poor baby girl :(

Christmas brought us no luck

Bethany had a great christmas she is now very itchy and her fingers are cut open a long with her arms. Her fingers keep swelling. At least we had a good christmas and she got spoilt rotton x

Christmas eve and still suffering

Bethany has not been too great the last couple of days even up to today which is Christmas eve. Her fingers are sliced open and getting infected and she is also really red but due to the massive amount of pressies manta is bringing her she will be very busy and hope for a itch free Christmas . Thank you everyone for all your support this year and please keep supporting either by reading her blog or checking out the facebook page support and understanding for Bethany 

https://www.facebook.com/pages/Support-Understanding-for-Bethany/273750466014879

more cuts= more pain

Its just a never ending story for my girl. one minute she goes up then right back down. i just want my daughter to be pain free and live a normal life. will 2013 bring us any luck. i really hope so

so sore

yesterday Bethany was so sore it was really horrible for her too see. tearing herself apart and crying in pain and there was nothing i could do too help her 

finally a step forward

On the 18th December the doctors has finally given me some tubi fast garments to try and help Bethany get some comfort. lets hope they work shes been so sore and itchy something needs to help her.

things just change so quickly

 on the 16th of december Bethany had really been enjoying the day and last couple of days with me having family and fun times. It was so nice too see her so happy it made me so happy. I thought maybe this is it that we have cracked it before Christmas but thats where i was proved wrong. later than night Bethany started itching and was covered in a rash from head too toe. my poor baby girl was in pain once again. Her condition is just so unreliable and changes in like the click of a button. maybe Christmas wont be a pain free one this year

Shes still good

on the 12th of decemeber Bethany had a heat reaction to her face. She was not too great but other than that un till the 14th of decemeber she was really good.. so glad it was not warm. only problem is the rest of us were freezing as we couldn't have the heating on for long. its was a really hard day for the rest of us but we would do anything to make Bethany better and comfterble

Back to the dermatologist

Been back to the specialist this morning and she is very pleased at how Bethany is looking today. Bethany has been a lot better for the last couple of days am keeping my fingers crossed it stays that way for a while. We are continuing the same treatment as we have the last two weeks and back off for possibly another blood test and back to see the specialist again in a month :D x

Tonight's heat reaction

Tonight Bethany has had another reaction to heat on her face. It doesn't seem to be bothering her too much which is great and is not making her itchy. Tonight her skin has not reacted like it has for the last two nights which is a relief. Hopefully we can all get a good night sleep and that we are on the up wards spiral again. The thing is Bethany's condition changes so quickly and from one or two up to a ridiculous amount of times a day. When will things get easier for my little girl.

Nursery for Beth

Bethany has not had a great morning at nursery today has had to have her legs bandaged and cut her leg from scratching she has had a very horrible heat reaction on her face lets hope today gets better for my princess

Spoke too soon

Unfortunatly i spoke to soon Bethany has had another reaction exactly the same as last night she is very sore

Back to the doctors

Went back to the doctors with Bethany yesterday they have changed her anti-biotics and that seems to be fine for her no reactions :D She also had her blood tests that afternoon testing for allergies and she hated it. She screamed and screamed and screamed i hate having to put my babies through this but i know its the only way . Good news no other reactions today either :D

Poor Bethany's allergic reaction

On Wednesday night i gave Bethany her medication as usual but the doctor had put her back on antibiotics that day. 5 minutes after i gave her the antibiotics my poor girl because rashy, blotchy, red and very itchy.

A normal day in the life of Bethany

Bethany woke up this morning and tore her wrist open not a good start to a snowy day. Been back to the doctors they are sorry to here how Bethany has been up and down and have put her back on antibiotics due to her open wounds and the risk of infection. The doctors have agreed to prescribe SOME tubi fast garments but they are not sure how many they can on there budget and they don't have everything we need. Bethany has her blood allergy testing tomorrow so we will have the results of that by the week after when we see her specialist again.

Very tearful little girl

Bethany has had a really bad couple of days flaring up so many times all day and night. Last night and the night before she was up screaming because she was so itchy and all of today she has been so itchy i wish i could take away her pain. At nursery on Monday and Tuesday they have noticed that her skin has been quite bad and unpredictable. We have now decided to keep a diary at nursery of every time she flares and what she was doing at the time so get a better picture for the specialist.

A good day, but a really bad night

Bethany had a really good day up till about 7 pm last night when her face started flaring and she got very itchy. Bethany eventually went to sleep but not for long. I heard her screaming so run up stairs and she had taken her clothes off and tore herself apart. Beth seems to be drying up so quickly and one minute she was fine then she was itchy and covered in blood. Its so upsetting